Early Onset Dementia Alberta Foundation (EODAF) is committed to building dementia awareness for those living with dementia under 65 years of age. The care partners and family face additional issues which have a high impact on stress in the home. Some of the additional issues are the loss of employment, living with dementia changes, dependents, financial commitments, being a physically fit person with dementia and having a primary care partner needing to work full time.
EODAF Annual Building Dementia Awareness Conference provides education for the person with dementia, care partner and families, healthcare professionals, politicians, students, educators and others interested in learning more about dementia. The conference is always well attended and attracts internationally respected speakers. This is the only open conference where all levels of organizations, government and Albertans can interact, network and collaborate.
We are pleased to be bridging with colleges and universities for further research into early onset dementia initiatives. EODAF Dementia Companion Dog research with the Scientific Projects Co-ordinator for CIRRIS (Centre for Interdisciplinary Research in Rehabilitation and Social Integration) is underway for evaluating the dementia person living well independently in the community with the assistance of a dog. Red Deer College conducted a research study on Early Onset Care Partner Stress which could be used to develop better support services for Care Partners. The results of this study will be presented at this conference. We are in discussion with the University of Lethbridge about developing an Early Onset Dementia Diagnosis Clinic to be used throughout Alberta. We have been invited to collaborate with University of Alberta on a new grant submission to further Evaluate My Tools 4Care In Care.
EODAF Financial Awareness Clinic in Edmonton is being run in conjunction with professional advisors monthly to address specific issues related to an Early Onset Dementia diagnosis. These sessions are intended to answer any questions regarding financial issues related to having a family member with Early Onset Dementia.
EODAF is developing a website to inform and to save time in a readily accessible manner about current information and items of interest to early onset dementia families. A monthly newsletter is distributed to EODAF members to share current information and services that may be of value.
EODAF supports the culture change initiatives in Alberta with Dementia Care Matters Canada and also supports the study being done by The Strategic Seniors Network related to a study on the care of adults with dementia (as younger adults).
EODAF is presenting at a workshop in Medicine Hat hosted by the Palliser PCNs on early onset dementia issues. This group is interested in having Lifeline Support for care partners and providing financial awareness to their audience.